Sylas was diagnosed with Wilms tumour. In March, Sylas had the tumour, along with his right kidney removed during an 8-hour surgery. The tumour had split into his abdomen and is currently in stage 3. The immediate plan for Sylas is to have 7 treatments of radiation along with 6 to 9 months of chemo. This journey will require the family to spend time away from their home and workplace.
Nick is a joyful, happy and athletic-minded 18 year old who has Cerebral Palsy. Nick does not sit, roll or transfer; he relies on the comfort and aid of his wheelchair to get through the day and lives life to the fullest. He uses the lift portion of his wheelchair to “stand” for O Canada, rise up to counters, see over hockey boards, look face to face with friends etc. With a balance of $3,409.00 on the lift, Nick’s mother Mandy is seeking financial support from Yes We Can Northumberland to help cover a portion of this cost and whatever funds we provide will be mailed directly to the vendor of this equipment.
Braydon, son of Kelly and Abigail Leclerc, who came down with a rare disease called Lafora and has been hospitalized since January 2018 and needs full-time care. LAFORA is progressive myoclonic epilepsy; it is also a fatal autosomal recessive genetic disorder. Although there is no cure yet, researchers are very close to discovering the cure for such disease.
A young, 23-year-old girl, daughter to John and Lesley Mensen and sister to Alexa and Maxwell. On Mother’s Day, May 14th, 2017, Paige suffered from a Thrombotic Ischemic Stroke overnight, placing her in a coma on life support. This type of stroke occurs when one of the brain’s main blood supply arteries becomes blocked, leaving the brain without oxygen and to suffer damage as a result. Paige was able to receive surgery to unblock the artery and has remained in great hospital care since. Having just celebrated her 23rd birthday on June 14th, this date also marks the one month since her stroke. Paige has only just begun what we know will be a very long and challenging journey towards recovery, and there is no doubt that someone so young and vibrant deserves the best chance at fulfilling her potential. She is an incredible fighter, and she is so strong, and with the love and support of her family, friends, and community, she’ll get that chance to walk out of recovery with a big smile, a full heart, and a fresh spirit.
The family of Kevin and Kortney Matthews, a local Port Hope family with 4 young children. Kortney is suffering from a rare cancer (Sarcoma) and is in the midst of an exhausting battle with the disease in Mount Sinai Hospital in Toronto.
11-year-old Jerzie was diagnosed with Medulloblastoma, a cancerous brain tumour, in February 2016. The doctors were able to remove
95% of the tumour, the other 5% was attached to her brain stem. After 3.5 weeks in the hospital, Jerzie and her mom stayed at the Ronald McDonald House while she received 6 weeks of radiation at Princess Margaret Hospital. After a 3 week rest period at home, Jerzie is now in the
early stages of chemotherapy treatment; she will undergo 8 rounds of chemo, one every 6 weeks, each time spending two days at Sick Kids, and then a weekly trip to Sick Kids for blood work and follow up and then home for rest. Jerzie is starting to regain her strength, mobility, and balance again with the help of physiotherapy. She is enjoying her own bed and the time spent at home, especially with her pets. She has also been receiving home schooling weekly as school and learning is something she misses dearly. Jerzie's mom has been off work since the end of January to take care of her and to ensure she is getting the best of care.
Owen is a 10-year-old Port Hope boy who suffers from mitochondrial disease. Mitochondria is the energy to our various cells and if impaired, our major organs do not receive the energy from the cells to keep them functioning properly. Mitochondrial disease is an inherited chronic illness that can be present at birth or develop later in life. It causes debilitating physical, developmental, and cognitive disabilities with symptoms including poor growth; loss of muscle coordination; muscle weakness and pain; seizures; vision and/or hearing loss; gastrointestinal issues; learning disabilities; and organ failure. About 1 in 2,000 people has Mito. It’s progressive and there is no cure. Owen was perfectly healthy and typically developing, until his symptoms first developed at 3yrs old, with vision problems. It progressed over the next few years to the point he now requires a wheelchair, full time. Due to the lack of knowledge of this disease, Owen wasn’t diagnosed until he was 8yrs old. Owen’s mother Sarah has been working on renovating the house to make it accessible for Owen; widening doors, a new washroom and still working on renovations to Owen’s room, including an entrance way to his room which has the engineering drawings completed, but does not have the financing to complete the project. We are hopeful, the Yes We Can fundraising efforts can help complete the project to their satisfaction.
Angelica from Roseneath is 17 years old and suffers from sacrococcygeal teratoma. Angelica was diagnosed in 2013 with a tumour at the base of her tailbone. Angelica has undergone major surgery to remove her tailbone and has been in and out of treatments at Sick Children’s Hospital for the past two years. Unfortunately, Angelica will undergo major surgery once again on June 26th. Any assistance we can provide to help cover the costs of travel, lodging, meals and many other unanticipated expenses will be greatly appreciated by the family.
Lydia was diagnosed at age 15 on March 27, 2013, at Kingston General Hospital. She has acute lymphoblastic leukemia (ALL). This type of blood Cancer is the result of the bone marrow producing cancer cells that destroy the good blood cells. In addition, she also has a rare blood condition called Philadelphia Chromosome. She is only 1 of 5 children in Ontario to have this condition and it makes her treatment substantially more intense due to the extra medication that is required. Lydia is in her second year of a three-year Chemotherapy treatment plan at Kingston General Hospital. In 2013, Lydia made 73 round trips to Kingston totaling over 20,000 kilometers, She spent 65 days in the hospital for either sickness and/or treatment. Lydia is an extremely talented person, her paintings are over the top and her long-term goal is to become a “Motivational Speaker”. One simply has to meet this wonderful young lady to realize she has the personality along with the inspiration to not only achieve her goal, but to excel well beyond even her own expectations.
Arianna Lee Marie Yarema
Arianna is the daughter of Adam Yarema and Kristin Carriere and big sister Lillie from Port Hope. Arianna was eight months old when doctors informed her parents she had problems with her little heart and was suffering from a disorder called Tetralogy of Fallot (TOF), the main issue being the presence of two holes between the four heart chambers. During her initial Procedure at Sick Kids Hospital in Toronto, Surgeons discovered that in addition to TOF, Arianna also had Severe Pulmonary Stenosis and MAPCA. These disorders restrict the blood flow from her heart to her lungs, reducing the amount of oxygen in her blood. A team of surgeons decided to perform a Catheterization inserting a stent into Arianna’s main pulmonary artery to allow more blood flow to her lungs, as the blood and oxygen are needed to give her energy to grow during the important development stages in her life. Five months later, Arianna was rushed to Sick Kids as she had outgrown the stent faster than anticipated. After another Catheterization, Arianna endured 22 hours of Open Heart Surgery, all to help increase the blood flow from her Pulmonary Artery into her lungs. Arianna spent another 40 days recovering in the Cardiac Critical Care Unit, moving to Cardiac Unit 4D until she grew strong enough to be discharged. Mom and dad, along with Lillie, lived at the Ronald McDonald house during the surgery and recovery, taking time off work as they were unsure what the next day would bring, causing not only emotional but financial strain on the entire family.
Jack, a 9-year-old Hamilton Township boy who suffers from Brittle Bone Disease has undergone 12 major surgeries along with other surgeries and treatments in both Kingston and Peterborough Hospitals. We are hoping our efforts will help ease some of the stress and challenges Jack's family endures on a daily basis and provide them with some support and encouragement from within our local community.
Ben, an 18-year-old Cobourg boy was an aspiring young athlete at 15 when an unfortunate diving accident left him a paraplegic. One cannot
imagine the sudden life adjustment that Ben and his family have encountered over the past 3 years. There are plenty of needs (too many to count) and we are hoping that our combined efforts will make some of these requirements become a reality. The most critical item is called a Bioness L300 Foot Drop System. It is a unit with a leg cuff, a gait sensor and a remote control that use wireless communication to “talk‟ to each other to help a person move (pick up a foot).
Larry Strickland, a well-known friend of the Yes We Can committee members, has recently been reluctantly moved to Legion Village, where he has struggled to adjust to his new lifestyle and routine. He has been forced to ask for rides to get groceries, to visit friends and family, all of which has caused extended stress on his lifestyle. The Yes We Can Committee would like to provide funding towards a mobility scooter that will help provide Larry the independence he deserves. Larry has spent a lifetime supporting others, coaching and helping with numerous sports teams (both men and women) and being a very active member of our community; it will be nice to return the thank you in the form of giving him back his independence.
Tyler Lynn suffers from Duchenne Muscular Dystrophy. The money from these proceeds will help support the cost and maintenance of a
wheelchair accessible van for Tyler. In 2014, Tyler was presented with an Electronic drum set and as per the comments below from Sharon, he was over the top:
“What an AMAZING day… Every year gets better and better. I just wanted to let you know I received a message from Terri that the drums are set up and Tyler absolutely loves them and plays for hours. What you and your group have done to help community members and Jesse’s Journey is astounding. I can’t tell you in words how much happiness you have brought to Tyler with your thoughtful gifts; although not necessary to give Tyler a gift (as Terri always mentions) they bring him so much happiness and we will be forever grateful; so THANK YOU!”